Laura's home!!

Laura got home on Monday afternoon. She's alot better now. She's starting to weight bear through her legs and is sitting much better. She is being weaned off Epilim and its making a difference.

Laura's in Temple Street.

Laura has a really bad dose of a viral/chest infection. She was admitted into Temple Street Childrens Hospital on Wednesday. She's on oxygen and will be there til after the weekend. Even though she was spiking temperatures, she still has had no seizures (Thank God). All her bloods and urine samples are coming back fine. She is on an intravenous antibiotic also. She is improving a little day by day.

Upsy Daisy!!!

We dressed Laura up for Hallowe'en as Upsy Daisy from "In the Night Garden" because God love all she ever used to was fall over. She used to be so floppy it was all we seemed to say to her. But that was prior to surgery. Here she is sat beside her big sister Emma and little brother Aaron. Laura can now sit up by herself for quite some time. She is only 8 weeks over the operation tomorrow. She is a changed child. At the moment we are having some feeding issues but it seems to be down to teething as when we do get something into her she isn't spitting it out! She is alot more alert, alot more nosy!! Laura's getting a giddy little girl, so here's to the new Laura xxx

Laura's babbling!!!!!

Yesterday Laura started saying na na na na, then ma ma ma ma. This morning Emma shouted, "Mammy, Mammy she's saying da da da da!! Was thrilled, I swear I woke Brian up at 7.30 this morning to let him hear her, he only got in from work at 02.30am. He was chuffed to bits. Emma is listening to every sound Laura is making. We are starting speech therapy on Monday week so am making a list of Laura's new sounds. We had physio last week and her therapist couldn't get over the difference in Laura's trunk control in just the few weeks. She will be 6 weeks over the operation next Thursday, am shocked at just how much the seizure's were holding her back.

Laura's 2!!

This is picture of Laura on her 2nd birthday. Since she got home last Friday, she has had a vomiting bug for a couple of days. God love her she has been real cranky all week. Soooo not like her, well not the old Laura anyway. But since the operation she is eating stuff she would never in a million years have eaten. She is even drinking from a beaker, which was unheard of before surgery.

She went back to pre school on Thursday and is going to a joint physio & occupational therapy session on Monday. Easy time is over, time to get to work!! She is sitting up alot straighter since the surgery. She still can't sit on her own but hopefully now with alot of physio we'll see some difference.

Laura's home!!

They let Laura home today!! At this moment she is fast asleep in her own bed. I really don't think I could stand another day in a hospital. So all is well with her at present. Will keep you posted. Its her birthday on Tuesday, thank God she's home.

Laura got transferred

Laura got transferred to Temple Street last night. She is doing really well. However her big sister Emma has chicken pox!! She is in isolation at the moment as she was in contact with Emma. There's a question now over whether the water blisters that Laura was breaking out in prior to surgery was nothing to do with tegretol at all. We are waiting on results of a blood test. She is now finished on Tegretol as of today and she'll be weaned off Epilum now. She is charted to be discharged on Friday, all going well. Can't wait to get her home.